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Lobbying registry · Canada (Federal)

RAREi - The Canadian Forum for Rare Disease Innovators

RAREi - The Canadian Forum for Rare Disease Innovators appears in the public Canadian lobbying registries. Clarion compiles its recorded registry activity — what it lobbies on, the public office holders it has logged meetings with, and its registered lobbyists — each line citing the official record. Recorded activity only, never a position or an outcome.

Communication reports (24 mo)
6
Last quarter
3
Institutions contacted
3

What they lobby on

Most-recorded subject matters across this organization's communication reports.

  • Budget6
  • Health6
  • Industry6
  • Research and Development3
  • Science and Technology3
  • Economic Development2
  • Foreign Affairs2
  • Intellectual Property2
  • International Trade2

Who they've met

Designated public office holders this organization has recorded meetings with. Roles shown only where the name matches our officials roster — otherwise the name as the registry recorded it.

  • Justine Frame

    Policy AdvisorHealth Canada (HC)

  • Dan Mazier

    MPCanada (Federal)

  • Sandenga Yeba

    Senior Policy AdvisorHealth Canada (HC)

  • Tom Kmiec

    MPCanada (Federal)

  • Manuela Tomic

    Senior Policy AdvisorInnovation, Science and Economic Development Canada (ISED)

  • Daniel MacDonald

    Director General, Office of Pharmaceutical Management StrategiesHealth Canada (HC)

Recent communications

Each report is filed by the organization with the registry. It records a contact, not a position.

  1. 2026-04-22By GERALD JEFFCOTT

    On Health; Industry; Budget; Science and Technology

    With Innovation, Science and Economic Development Canada (ISED), Health Canada (HC)

    Official record ↗

  2. 2026-04-14By WILLIAM DEMPSTER

    On Health; Industry; Intellectual Property; Science and Technology

    With House of Commons

    Official record ↗

  3. 2026-04-14By Johanne Chambers

    On Health; Industry; Intellectual Property; Science and Technology

    With House of Commons

    Official record ↗

  4. 2025-10-01By GERALD JEFFCOTT

    On Health; Industry; Budget

    With House of Commons, Health Canada (HC)

    Official record ↗

  5. 2025-10-01By Stephanie Levee

    On Health; Industry; Budget

    With Health Canada (HC)

    Official record ↗

  6. 2025-10-01By Stephanie Levee

    On Health; Industry; Budget

    With House of Commons

    Official record ↗

Registered lobbyists

Active registrations naming this organization as the client.

Drawn from the public Canadian lobbying registries Clarion ingests. Recorded registry activity — meetings logged by the organization, not evidence of influence or outcome. We never imply a bill was lobbied or a position taken. Coverage for this organization: Canada (Federal).

Registry data as of 2026-06-25.

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