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Lobbying registry · Canada (Federal)

Canadian Organization for Rare Disorders

Canadian Organization for Rare Disorders appears in the public Canadian lobbying registries. Clarion compiles its recorded registry activity — what it lobbies on, the public office holders it has logged meetings with, and its registered lobbyists — each line citing the official record. Recorded activity only, never a position or an outcome.

Communication reports (24 mo)
6
Last quarter
5
Institutions contacted
3

What they lobby on

Most-recorded subject matters across this organization's communication reports.

  • Budget6
  • Health6
  • Industry6
  • Research and Development6
  • Science and Technology6
  • Intellectual Property5

Who they've met

Designated public office holders this organization has recorded meetings with. Roles shown only where the name matches our officials roster — otherwise the name as the registry recorded it.

  • Daniel MacDonald

    Director General, Office of Pharmaceutical Management StrategiesHealth Canada (HC)

  • Mackenzy Metcalfe

    Policy AdvisorFinance Canada (FIN)

  • Helena Jaczek

    MPCanada (Federal)

  • Justine Frame

    Policy AdvisorHealth Canada (HC)

  • Marcus Powlowski

    MPCanada (Federal)

  • Sandenga Yeba

    Director of Policy & Deputy Chief of StaffHealth Canada (HC)

  • Luc Theriault

    MPHouse of Commons

Recent communications

Each report is filed by the organization with the registry. It records a contact, not a position.

  1. 2026-05-27By Stephanie Levee

    On Health; Intellectual Property; Research and Development; Industry

    With Finance Canada (FIN)

    Official record ↗

  2. 2026-05-27By WILLIAM DEMPSTER

    On Health; Industry; Intellectual Property; Research and Development

    With Health Canada (HC)

    Official record ↗

  3. 2026-05-26By WILLIAM DEMPSTER

    On Health; Industry; Science and Technology; Budget

    With Health Canada (HC)

    Official record ↗

  4. 2026-05-26By WILLIAM DEMPSTER

    On Health; Budget; Research and Development; Industry

    With House of Commons

    Official record ↗

  5. 2026-05-26By Stephanie Levee

    On Health; Industry; Science and Technology; Budget

    With House of Commons

    Official record ↗

  6. 2025-10-10By Johanne Chambers

    On Health; Industry; Science and Technology; Research and Development

    With House of Commons

    Official record ↗

Registered lobbyists

Active registrations naming this organization as the client.

Drawn from the public Canadian lobbying registries Clarion ingests. Recorded registry activity — meetings logged by the organization, not evidence of influence or outcome. We never imply a bill was lobbied or a position taken. Coverage for this organization: Canada (Federal).

Registry data as of 2026-06-25.

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